Serveur d'exploration sur les relations entre la France et l'Australie

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Updating the OMERACT Filter: Implications for Patient-reported Outcomes : OMERACT 11: The OMERACT Filter 2.0

Identifieur interne : 003F00 ( Main/Exploration ); précédent : 003E99; suivant : 003F01

Updating the OMERACT Filter: Implications for Patient-reported Outcomes : OMERACT 11: The OMERACT Filter 2.0

Auteurs : John R. Kirwan [Royaume-Uni, Canada, États-Unis, Pays-Bas, Australie, France, Norvège, Belgique] ; Susan J. Bartlett ; Dorcas E. Beaton ; Maarten Boers ; Ailsa Bosworth ; Peter M. Brooks ; Ernest Choy ; Maarten De Wit ; Francis Guillemin ; Sarah Hewlett ; Tore K. Kvien ; Robert B. Landewe ; Amye L. Leong ; Anne Lyddiatt ; Lyn March ; James May ; Pamela Lesley Montie ; Enkeleida Nikaï ; Pam Richards ; Marieke M. J. H. Voshaar ; Wilma Smeets ; Vibeke Strand ; Peter Tugwell ; Laure Gossec

Source :

RBID : Pascal:14-0157479

Descripteurs français

English descriptors

Abstract

Objective. At a previous Outcome Measures in Rheumatology (OMERACT) meeting, participants reflected on the underlying methods of patient-reported outcome (PRO) instrument development. The participants requested proposals for more explicit instrument development protocols that would contribute to an enhanced version of the "Truth" statement in the OMERACT Filter, a widely used guide for outcome validation. In the present OMERACT session, we explored to what extent these new Filter 2.0 proposals were practicable, feasible, and already being applied. Methods. Following overview presentations, discussion groups critically reviewed the extent to which case studies of current OMERACT Working Groups complied with or negated the proposed PRO development framework, whether these observations had a more general application, and what issues remained to be resolved. Results. Several aspects of PRO development were recognized as particularly important, and the need to directly involve patients at every stage of an iterative PRO development program was endorsed. This included recognition that patients contribute as partners in the research and not merely as subjects. Correct communication of concepts with the words used in questionnaires was central to their performance as measuring instruments, and ensuring this understanding crossed cultural and linguistic boundaries was important in international studies or comparisons. Conclusion. Participants recognized, endorsed, and were generally already putting into practice the principles of PRO development presented in the plenary session. Further work is needed on some existing instruments and on establishing widespread good practice for working in close collaboration with patients.


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Le document en format XML

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<settlement type="city">Bruxelles</settlement>
<region nuts="2">Région de Bruxelles-Capitale</region>
</placeName>
</affiliation>
<affiliation wicri:level="2">
<inist:fA14 i1="17">
<s1>Division of Immunology/Rheumatology, Stanford University School of Medicine</s1>
<s2>Palo Alto, California</s2>
<s3>USA</s3>
</inist:fA14>
<country>États-Unis</country>
<placeName>
<region type="state">Californie</region>
</placeName>
</affiliation>
<affiliation wicri:level="1">
<inist:fA14 i1="18">
<s1>Department of Medicine, University of Ottawa</s1>
<s2>Ottawa, Ontario</s2>
<s3>CAN</s3>
</inist:fA14>
<country>Canada</country>
<wicri:noRegion>Ottawa, Ontario</wicri:noRegion>
</affiliation>
<affiliation wicri:level="4">
<inist:fA14 i1="19">
<s1>Université Pierre et Marie Curie (UPMC) - Paris 6, GRC-UMPC 08 (EEMOIS)</s1>
<s3>FRA</s3>
</inist:fA14>
<country>France</country>
<wicri:noRegion>GRC-UMPC 08 (EEMOIS)</wicri:noRegion>
<wicri:noRegion>Université Pierre et Marie Curie (UPMC) - Paris 6, GRC-UMPC 08 (EEMOIS)</wicri:noRegion>
<orgName type="university">Université Pierre-et-Marie-Curie</orgName>
<placeName>
<settlement type="city">Paris</settlement>
<region type="region" nuts="2">Île-de-France</region>
</placeName>
</affiliation>
<affiliation wicri:level="3">
<inist:fA14 i1="20">
<s1>AP-HP Pitié Salpêtrière Hospital, Department of Rheumatology</s1>
<s2>Paris</s2>
<s3>FRA</s3>
</inist:fA14>
<country>France</country>
<placeName>
<region type="region">Île-de-France</region>
<region type="old region">Île-de-France</region>
<settlement type="city">Paris</settlement>
</placeName>
</affiliation>
</author>
<author>
<name sortKey="Bartlett, Susan J" sort="Bartlett, Susan J" uniqKey="Bartlett S" first="Susan J." last="Bartlett">Susan J. Bartlett</name>
</author>
<author>
<name sortKey="Beaton, Dorcas E" sort="Beaton, Dorcas E" uniqKey="Beaton D" first="Dorcas E." last="Beaton">Dorcas E. Beaton</name>
</author>
<author>
<name sortKey="Boers, Maarten" sort="Boers, Maarten" uniqKey="Boers M" first="Maarten" last="Boers">Maarten Boers</name>
</author>
<author>
<name sortKey="Bosworth, Ailsa" sort="Bosworth, Ailsa" uniqKey="Bosworth A" first="Ailsa" last="Bosworth">Ailsa Bosworth</name>
</author>
<author>
<name sortKey="Brooks, Peter M" sort="Brooks, Peter M" uniqKey="Brooks P" first="Peter M." last="Brooks">Peter M. Brooks</name>
</author>
<author>
<name sortKey="Choy, Ernest" sort="Choy, Ernest" uniqKey="Choy E" first="Ernest" last="Choy">Ernest Choy</name>
</author>
<author>
<name sortKey="De Wit, Maarten" sort="De Wit, Maarten" uniqKey="De Wit M" first="Maarten" last="De Wit">Maarten De Wit</name>
</author>
<author>
<name sortKey="Guillemin, Francis" sort="Guillemin, Francis" uniqKey="Guillemin F" first="Francis" last="Guillemin">Francis Guillemin</name>
</author>
<author>
<name sortKey="Hewlett, Sarah" sort="Hewlett, Sarah" uniqKey="Hewlett S" first="Sarah" last="Hewlett">Sarah Hewlett</name>
</author>
<author>
<name sortKey="Kvien, Tore K" sort="Kvien, Tore K" uniqKey="Kvien T" first="Tore K." last="Kvien">Tore K. Kvien</name>
</author>
<author>
<name sortKey="Landewe, Robert B" sort="Landewe, Robert B" uniqKey="Landewe R" first="Robert B." last="Landewe">Robert B. Landewe</name>
</author>
<author>
<name sortKey="Leong, Amye L" sort="Leong, Amye L" uniqKey="Leong A" first="Amye L." last="Leong">Amye L. Leong</name>
</author>
<author>
<name sortKey="Lyddiatt, Anne" sort="Lyddiatt, Anne" uniqKey="Lyddiatt A" first="Anne" last="Lyddiatt">Anne Lyddiatt</name>
</author>
<author>
<name sortKey="March, Lyn" sort="March, Lyn" uniqKey="March L" first="Lyn" last="March">Lyn March</name>
</author>
<author>
<name sortKey="May, James" sort="May, James" uniqKey="May J" first="James" last="May">James May</name>
</author>
<author>
<name sortKey="Montie, Pamela Lesley" sort="Montie, Pamela Lesley" uniqKey="Montie P" first="Pamela Lesley" last="Montie">Pamela Lesley Montie</name>
</author>
<author>
<name sortKey="Nikai, Enkeleida" sort="Nikai, Enkeleida" uniqKey="Nikai E" first="Enkeleida" last="Nikaï">Enkeleida Nikaï</name>
</author>
<author>
<name sortKey="Richards, Pam" sort="Richards, Pam" uniqKey="Richards P" first="Pam" last="Richards">Pam Richards</name>
</author>
<author>
<name sortKey="Voshaar, Marieke M J H" sort="Voshaar, Marieke M J H" uniqKey="Voshaar M" first="Marieke M. J. H." last="Voshaar">Marieke M. J. H. Voshaar</name>
</author>
<author>
<name sortKey="Smeets, Wilma" sort="Smeets, Wilma" uniqKey="Smeets W" first="Wilma" last="Smeets">Wilma Smeets</name>
</author>
<author>
<name sortKey="Strand, Vibeke" sort="Strand, Vibeke" uniqKey="Strand V" first="Vibeke" last="Strand">Vibeke Strand</name>
</author>
<author>
<name sortKey="Tugwell, Peter" sort="Tugwell, Peter" uniqKey="Tugwell P" first="Peter" last="Tugwell">Peter Tugwell</name>
</author>
<author>
<name sortKey="Gossec, Laure" sort="Gossec, Laure" uniqKey="Gossec L" first="Laure" last="Gossec">Laure Gossec</name>
</author>
</analytic>
<series>
<title level="j" type="main">Journal of rheumatology</title>
<title level="j" type="abbreviated">J. rheumatol.</title>
<idno type="ISSN">0315-162X</idno>
<imprint>
<date when="2014">2014</date>
</imprint>
</series>
</biblStruct>
</sourceDesc>
<seriesStmt>
<title level="j" type="main">Journal of rheumatology</title>
<title level="j" type="abbreviated">J. rheumatol.</title>
<idno type="ISSN">0315-162X</idno>
</seriesStmt>
</fileDesc>
<profileDesc>
<textClass>
<keywords scheme="KwdEn" xml:lang="en">
<term>Filter</term>
<term>Human</term>
<term>Humans</term>
<term>Outcome and Process Assessment (Health Care) (standards)</term>
<term>Outcome and Process Assessment (Health Care) (trends)</term>
<term>Patient Participation</term>
<term>Prognosis</term>
<term>Randomized Controlled Trials as Topic (standards)</term>
<term>Reproducibility of Results</term>
<term>Rheumatic Diseases (therapy)</term>
<term>Rheumatology</term>
<term>Rheumatology (standards)</term>
<term>Self Report (standards)</term>
<term>Updating</term>
</keywords>
<keywords scheme="KwdFr" xml:lang="fr">
<term>Autorapport (normes)</term>
<term>Essais contrôlés randomisés comme sujet (normes)</term>
<term>Humains</term>
<term>Participation du patient</term>
<term>Reproductibilité des résultats</term>
<term>Rhumatismes ()</term>
<term>Rhumatologie (normes)</term>
<term>Évaluation des résultats et des processus en soins de santé (normes)</term>
<term>Évaluation des résultats et des processus en soins de santé (tendances)</term>
</keywords>
<keywords scheme="MESH" qualifier="normes" xml:lang="fr">
<term>Autorapport</term>
<term>Essais contrôlés randomisés comme sujet</term>
<term>Rhumatologie</term>
<term>Évaluation des résultats et des processus en soins de santé</term>
</keywords>
<keywords scheme="MESH" qualifier="standards" xml:lang="en">
<term>Outcome and Process Assessment (Health Care)</term>
<term>Randomized Controlled Trials as Topic</term>
<term>Rheumatology</term>
<term>Self Report</term>
</keywords>
<keywords scheme="MESH" qualifier="tendances" xml:lang="fr">
<term>Évaluation des résultats et des processus en soins de santé</term>
</keywords>
<keywords scheme="MESH" qualifier="therapy" xml:lang="en">
<term>Rheumatic Diseases</term>
</keywords>
<keywords scheme="MESH" qualifier="trends" xml:lang="en">
<term>Outcome and Process Assessment (Health Care)</term>
</keywords>
<keywords scheme="MESH" xml:lang="en">
<term>Humans</term>
<term>Patient Participation</term>
<term>Reproducibility of Results</term>
</keywords>
<keywords scheme="Pascal" xml:lang="fr">
<term>Humains</term>
<term>Mise à jour</term>
<term>Filtre</term>
<term>Homme</term>
<term>Participation du patient</term>
<term>Pronostic</term>
<term>Reproductibilité des résultats</term>
<term>Rhumatismes</term>
<term>Rhumatologie</term>
</keywords>
<keywords scheme="Wicri" type="topic" xml:lang="fr">
<term>Homme</term>
</keywords>
</textClass>
</profileDesc>
</teiHeader>
<front>
<div type="abstract" xml:lang="en">Objective. At a previous Outcome Measures in Rheumatology (OMERACT) meeting, participants reflected on the underlying methods of patient-reported outcome (PRO) instrument development. The participants requested proposals for more explicit instrument development protocols that would contribute to an enhanced version of the "Truth" statement in the OMERACT Filter, a widely used guide for outcome validation. In the present OMERACT session, we explored to what extent these new Filter 2.0 proposals were practicable, feasible, and already being applied. Methods. Following overview presentations, discussion groups critically reviewed the extent to which case studies of current OMERACT Working Groups complied with or negated the proposed PRO development framework, whether these observations had a more general application, and what issues remained to be resolved. Results. Several aspects of PRO development were recognized as particularly important, and the need to directly involve patients at every stage of an iterative PRO development program was endorsed. This included recognition that patients contribute as partners in the research and not merely as subjects. Correct communication of concepts with the words used in questionnaires was central to their performance as measuring instruments, and ensuring this understanding crossed cultural and linguistic boundaries was important in international studies or comparisons. Conclusion. Participants recognized, endorsed, and were generally already putting into practice the principles of PRO development presented in the plenary session. Further work is needed on some existing instruments and on establishing widespread good practice for working in close collaboration with patients.</div>
</front>
</TEI>
<affiliations>
<list>
<country>
<li>Australie</li>
<li>Belgique</li>
<li>Canada</li>
<li>France</li>
<li>Norvège</li>
<li>Pays-Bas</li>
<li>Royaume-Uni</li>
<li>États-Unis</li>
</country>
<region>
<li>Californie</li>
<li>Hollande-Septentrionale</li>
<li>Maryland</li>
<li>Ontario</li>
<li>Québec</li>
<li>Région de Bruxelles-Capitale</li>
<li>Île-de-France</li>
<li>Østlandet</li>
</region>
<settlement>
<li>Amsterdam</li>
<li>Bruxelles</li>
<li>Montréal</li>
<li>Nancy</li>
<li>Oslo</li>
<li>Paris</li>
<li>Toronto</li>
</settlement>
<orgName>
<li>Université McGill</li>
<li>Université Pierre-et-Marie-Curie</li>
<li>Université de Lorraine</li>
<li>Université de Toronto</li>
</orgName>
</list>
<tree>
<noCountry>
<name sortKey="Bartlett, Susan J" sort="Bartlett, Susan J" uniqKey="Bartlett S" first="Susan J." last="Bartlett">Susan J. Bartlett</name>
<name sortKey="Beaton, Dorcas E" sort="Beaton, Dorcas E" uniqKey="Beaton D" first="Dorcas E." last="Beaton">Dorcas E. Beaton</name>
<name sortKey="Boers, Maarten" sort="Boers, Maarten" uniqKey="Boers M" first="Maarten" last="Boers">Maarten Boers</name>
<name sortKey="Bosworth, Ailsa" sort="Bosworth, Ailsa" uniqKey="Bosworth A" first="Ailsa" last="Bosworth">Ailsa Bosworth</name>
<name sortKey="Brooks, Peter M" sort="Brooks, Peter M" uniqKey="Brooks P" first="Peter M." last="Brooks">Peter M. Brooks</name>
<name sortKey="Choy, Ernest" sort="Choy, Ernest" uniqKey="Choy E" first="Ernest" last="Choy">Ernest Choy</name>
<name sortKey="De Wit, Maarten" sort="De Wit, Maarten" uniqKey="De Wit M" first="Maarten" last="De Wit">Maarten De Wit</name>
<name sortKey="Gossec, Laure" sort="Gossec, Laure" uniqKey="Gossec L" first="Laure" last="Gossec">Laure Gossec</name>
<name sortKey="Guillemin, Francis" sort="Guillemin, Francis" uniqKey="Guillemin F" first="Francis" last="Guillemin">Francis Guillemin</name>
<name sortKey="Hewlett, Sarah" sort="Hewlett, Sarah" uniqKey="Hewlett S" first="Sarah" last="Hewlett">Sarah Hewlett</name>
<name sortKey="Kvien, Tore K" sort="Kvien, Tore K" uniqKey="Kvien T" first="Tore K." last="Kvien">Tore K. Kvien</name>
<name sortKey="Landewe, Robert B" sort="Landewe, Robert B" uniqKey="Landewe R" first="Robert B." last="Landewe">Robert B. Landewe</name>
<name sortKey="Leong, Amye L" sort="Leong, Amye L" uniqKey="Leong A" first="Amye L." last="Leong">Amye L. Leong</name>
<name sortKey="Lyddiatt, Anne" sort="Lyddiatt, Anne" uniqKey="Lyddiatt A" first="Anne" last="Lyddiatt">Anne Lyddiatt</name>
<name sortKey="March, Lyn" sort="March, Lyn" uniqKey="March L" first="Lyn" last="March">Lyn March</name>
<name sortKey="May, James" sort="May, James" uniqKey="May J" first="James" last="May">James May</name>
<name sortKey="Montie, Pamela Lesley" sort="Montie, Pamela Lesley" uniqKey="Montie P" first="Pamela Lesley" last="Montie">Pamela Lesley Montie</name>
<name sortKey="Nikai, Enkeleida" sort="Nikai, Enkeleida" uniqKey="Nikai E" first="Enkeleida" last="Nikaï">Enkeleida Nikaï</name>
<name sortKey="Richards, Pam" sort="Richards, Pam" uniqKey="Richards P" first="Pam" last="Richards">Pam Richards</name>
<name sortKey="Smeets, Wilma" sort="Smeets, Wilma" uniqKey="Smeets W" first="Wilma" last="Smeets">Wilma Smeets</name>
<name sortKey="Strand, Vibeke" sort="Strand, Vibeke" uniqKey="Strand V" first="Vibeke" last="Strand">Vibeke Strand</name>
<name sortKey="Tugwell, Peter" sort="Tugwell, Peter" uniqKey="Tugwell P" first="Peter" last="Tugwell">Peter Tugwell</name>
<name sortKey="Voshaar, Marieke M J H" sort="Voshaar, Marieke M J H" uniqKey="Voshaar M" first="Marieke M. J. H." last="Voshaar">Marieke M. J. H. Voshaar</name>
</noCountry>
<country name="Royaume-Uni">
<noRegion>
<name sortKey="Kirwan, John R" sort="Kirwan, John R" uniqKey="Kirwan J" first="John R." last="Kirwan">John R. Kirwan</name>
</noRegion>
<name sortKey="Kirwan, John R" sort="Kirwan, John R" uniqKey="Kirwan J" first="John R." last="Kirwan">John R. Kirwan</name>
<name sortKey="Kirwan, John R" sort="Kirwan, John R" uniqKey="Kirwan J" first="John R." last="Kirwan">John R. Kirwan</name>
</country>
<country name="Canada">
<region name="Québec">
<name sortKey="Kirwan, John R" sort="Kirwan, John R" uniqKey="Kirwan J" first="John R." last="Kirwan">John R. Kirwan</name>
</region>
<name sortKey="Kirwan, John R" sort="Kirwan, John R" uniqKey="Kirwan J" first="John R." last="Kirwan">John R. Kirwan</name>
<name sortKey="Kirwan, John R" sort="Kirwan, John R" uniqKey="Kirwan J" first="John R." last="Kirwan">John R. Kirwan</name>
<name sortKey="Kirwan, John R" sort="Kirwan, John R" uniqKey="Kirwan J" first="John R." last="Kirwan">John R. Kirwan</name>
<name sortKey="Kirwan, John R" sort="Kirwan, John R" uniqKey="Kirwan J" first="John R." last="Kirwan">John R. Kirwan</name>
</country>
<country name="États-Unis">
<region name="Maryland">
<name sortKey="Kirwan, John R" sort="Kirwan, John R" uniqKey="Kirwan J" first="John R." last="Kirwan">John R. Kirwan</name>
</region>
<name sortKey="Kirwan, John R" sort="Kirwan, John R" uniqKey="Kirwan J" first="John R." last="Kirwan">John R. Kirwan</name>
<name sortKey="Kirwan, John R" sort="Kirwan, John R" uniqKey="Kirwan J" first="John R." last="Kirwan">John R. Kirwan</name>
</country>
<country name="Pays-Bas">
<region name="Hollande-Septentrionale">
<name sortKey="Kirwan, John R" sort="Kirwan, John R" uniqKey="Kirwan J" first="John R." last="Kirwan">John R. Kirwan</name>
</region>
<name sortKey="Kirwan, John R" sort="Kirwan, John R" uniqKey="Kirwan J" first="John R." last="Kirwan">John R. Kirwan</name>
</country>
<country name="Australie">
<noRegion>
<name sortKey="Kirwan, John R" sort="Kirwan, John R" uniqKey="Kirwan J" first="John R." last="Kirwan">John R. Kirwan</name>
</noRegion>
<name sortKey="Kirwan, John R" sort="Kirwan, John R" uniqKey="Kirwan J" first="John R." last="Kirwan">John R. Kirwan</name>
</country>
<country name="France">
<region name="Île-de-France">
<name sortKey="Kirwan, John R" sort="Kirwan, John R" uniqKey="Kirwan J" first="John R." last="Kirwan">John R. Kirwan</name>
</region>
<name sortKey="Kirwan, John R" sort="Kirwan, John R" uniqKey="Kirwan J" first="John R." last="Kirwan">John R. Kirwan</name>
<name sortKey="Kirwan, John R" sort="Kirwan, John R" uniqKey="Kirwan J" first="John R." last="Kirwan">John R. Kirwan</name>
</country>
<country name="Norvège">
<region name="Østlandet">
<name sortKey="Kirwan, John R" sort="Kirwan, John R" uniqKey="Kirwan J" first="John R." last="Kirwan">John R. Kirwan</name>
</region>
</country>
<country name="Belgique">
<region name="Région de Bruxelles-Capitale">
<name sortKey="Kirwan, John R" sort="Kirwan, John R" uniqKey="Kirwan J" first="John R." last="Kirwan">John R. Kirwan</name>
</region>
</country>
</tree>
</affiliations>
</record>

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